Update for Megat

This is Megat sitting on my chest. I have to wrap him up in a towel when putting in the suppository in his anus. Then he needs to be restrained for about 30 to 40 minutes for the lingzhi to be absorbed. It's a long process but we are used to it. 

We had spoken with Dr Ly regarding Megat's care. He said it was ok not to continue with the vincristine as we don't actually know for sure if it would be as helpful for him now. So we discussed other protocols. 

He has put on more weight and is now 3.49 kg. I was quite relieved at this as I was afraid he may not have eaten enough to sustain his organs. Of cos he still needs to be hand- fed in the  mornings. 

Megat is on Éprex as he is anaemic and we need to go back this Saturday for a blood test and his PCV. Dr Ly said that if he gets worse suddenly I needed to bring him in for a blood transfusion but he is holding on, much to my relief. 

I guess I will have to discuss it with Bujang as he had given blood for Totoro last year. Of course Bujang blood type is A. I do not know Megat's blood type at all but I hope I do not need to know that. 

Update for Totoro

an old pic of Toro

Toro had 70 ml of Type A blood from Bujang. He was all wrapped up in a rowel when I saw him, sitting quietly when a nurse gave him his blood transfusion. He was cold as he was also anemic due to the operation on Saturday.

I saw Dr Ly and he told me that when during surgery he saw that his left kidney was not working at all due to the amount of sand in it. His right kidney was misshapen and swollen and when he cut it, the urine spurted out of it. This kidney was also almost blocked by sand. There was no big stone already as the 2 big calculi has dissolved into sand and he had to siphon all of that out. Of course as a result of the cut, he has anemia as well and his urea and creatinine levels are way up. Dr Ly said that without the surgery, he would only have about 3 weeks before his kidney totally shut down.

Now that the had gotten rid of the sand, he could now urinate better and he was pleased with that. However, because Toro was so stressed in hospital, he was not getting any better so he wanted me to bring him home to see if home would be better. Dr Ly said this would be his recommendation always but he wanted to monitor Toro in hospital and that was why he had to stay.

He also added that he did not know where the sand came from (and of course this was what had puzzled all his doctors from 2 years ago as well). He said all that we could do now is monitor his urea and creatinine and he has to get sub q 250 daily. he would also be given some meds for his anemia. he has to take his usual kidney medicine and we have to come back in 2 days.

When I left him in hospital, he was asleep and so I hope that Dr Ly is right - that home would be better for him. (He did perk up a little when he heard Bujang wailing in the hospital). I hope his PCV is better but I will only know this tonight.

UPDATE:
Toro's pcv is now up to 20% from 10%, thanks to Bujang. But it sems sometimes it would take much longer to get a true reading so tomorrow we are going to Tampines to get his pcv reading. His review with Dr Ly is on Wednesday.

He came home at 7.40 and immediately inspected the house. Then he hid in the tunnel but he actually allowed himself to be syringe-fed with the mixture that Katie had shared with us, but only about 5 ml of it before he decided that enough is enough. he drank some water by himself (HOORAY!) and is now in bed, sitting on my blanket.

He has eprex for anemia and a herbal remedy to increase his blood pcv as well. Of course he came home with painkillers and anti-biotics. It is lucky that he is also quite easy to pill.